OUR HISTORY
This foundation began as a wish of a mother whose child was diagnosed with Neurofibromatosis and needed support to face this condition. It was possible because of the commitment of his amazing Doctor and friends that have been involved throughout the years in this challenging journey full of hope.
WHY WE DECIDED TO CREATE GENES?
We created GENES to educate patients, parents and siblings about the genetic condition the child was diagnosed and now is facing.
We offer tools that will provide the emotional and physical support needed for the patient and their family.
We help them to understand that through the experience we’ve gained by dealing with a similar situation, we as a team can help the patient to achieve his or her full potential with love and persistence.
We want to encourage families to spread the word regarding all the services available to those facing genetic conditions. Hopefully they can become a beacon for others as well, giving back to this community.
The more we work together, the more we can help others who are in desperate need for emotional support.
This foundation began as a wish of a mother whose child was diagnosed with Neurofibromatosis and needed support to face this condition. It was possible because of the commitment of his amazing Doctor and friends that have been involved throughout the years in this challenging journey full of hope.
WHY WE DECIDED TO CREATE GENES?
We created GENES to educate patients, parents and siblings about the genetic condition the child was diagnosed and now is facing.
We offer tools that will provide the emotional and physical support needed for the patient and their family.
We help them to understand that through the experience we’ve gained by dealing with a similar situation, we as a team can help the patient to achieve his or her full potential with love and persistence.
We want to encourage families to spread the word regarding all the services available to those facing genetic conditions. Hopefully they can become a beacon for others as well, giving back to this community.
The more we work together, the more we can help others who are in desperate need for emotional support.
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WHO WE ARE The Inspiration: Emilio Pachon The Mom: Andrea Villegas The Doctors: Dr. Mislen Bauer, MD, FACMG Dr. Alberto Vélez Van Meerbeke, M.D., MSc, Neuropediatrician. Dr. Juan Sebastian Botero Meneses, M.D. The Psychologist: Dra. Sandra Deris Atassi, Psy.D. Carlos Morales Ana María Gómez Carvajal, MSc. GENES Argentina: Patricia Molnar GENES Colombia: Claudia Seltzer GENES Paraguay : Hanice Garcia GENES Perú: Diana Céspedes GENES Communications: Yanina Flores Manuela Hosie Natalia Villegas GENES Programa de Inclusión: Maria Isabel Garces Friends: Ada Casiano , LMFT
Barbara Barcelo Roca, MS, CCC - LSP. Mayelei Remis Gaunaurd Dr. Caridad Pascal Ph.D Julie Reyes, MPT Carmen Arango MS, CHT,ADR Valeria Fontanals, ED. M., SS Angela Maria Camacho Jenny Valdes Maria Vilella Marycarmen Torres Frances Capo Hazzel Miranda Veronica Beltran Priscila Fakhouri |
"My condition is just a small part of who I am. It doesn't define me".
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