Genes Foundation
  • Home
  • ESPAÑOL
    • Inicio
    • Nuestra Historia
    • Nuestras metas
    • ¿Quiénes somos?
    • Nuestros Servicios
    • Condiciones Genéticas
    • Eventos & Actividades >
      • Colombia
      • Argentina
      • Perú
      • Miami
    • Agenda
  • About
  • SERVICES
  • IMPORTANT INFORMATION
  • Conditions
  • Contact & Donate
  • WORKSHOPS
  • Events & Fundraisers
  • Agenda
  • Blog

"Emilio is always a source of inspiration.
Gratitude for his life and teachings.
​Unconditional love is the answer.
His family understood that his time on this world was short-lived but with a loving presence.
We will honor him each and every day of our lives. Thank you Emi."

OUR HISTORY
This foundation began as a wish of a mother whose child was diagnosed with Neurofibromatosis and needed support to face this condition. It was possible because of the commitment of his amazing Doctor and friends that have been involved throughout the years in this challenging  journey full of hope.

WHY WE DECIDED TO CREATE GENES?

We created GENES to educate patients, parents and siblings about the genetic condition the child was diagnosed and now is facing.  ​ 
We offer tools that will provide the emotional and physical support needed for the patient and their family.
We help them to understand that through the experience we’ve gained by dealing with a similar situation, we as a team can help the patient to achieve his or her full potential with love and persistence.
We want to encourage families to spread the word regarding all the services available to those facing genetic conditions. Hopefully they can become a beacon for others as well, giving back to this community.

The more we work together, the more we can help others who are in desperate need for emotional
support.



​
WHO WE ARE
The Inspiration: Emilio Pachon
The Mom: Andrea Villegas
The Doctors: Dr. Mislen Bauer, MD, FACMG
                       Dr. Alberto Vélez Van Meerbeke, M.D., MSc,
                       Neuropediatrician.
                       Dr. Juan Sebastian Botero Meneses, M.D.

The Psychologist: Dra. Sandra Deris Atassi, Psy.D.
                               Valeria Fontanals, Ed M, School Psychologist
                               Carlos Morales, Clinic Psychologist
                               Ana María G
ómez Carvajal, MSc.
​
​GENES Argentina: Patricia Molnar
​GENES Colombia: Claudia Seltzer
GENES Paraguay : Hanice Garcia




GENES Communications: Yanina Flores 
                                            Manuela Hosie
                                            Natalia Villegas
                                            Emiliano Soccol - Quo Ideas
​
GENES Programa de Inclusión: Maria Isabel Garces


Friends:  Ada Casiano , LMFT
                Barbara Barcelo Roca, MS, CCC - LSP.
                Mayelei Remis Gaunaurd
                Dr. Caridad Pascal Ph.D
                Julie Reyes, MPT
                Carmen Arango MS MFT - Registered Intern                                          Valeria Fontanals, ED. M., SS
                Angela Maria Camacho
​                Jenny Valdes
​                Maria Vilella
                Marycarmen Torres
                Frances Capo
                Hazzel Miranda
                Veronica Beltran
                Priscila Fakhouri
​                Julia Fortoul
                

                             
             ​
Picture
"My condition is just a small part of who I am.  It doesn't define me".
Picture
   GENES Education & Support Foundation is a 501(c)3  - Donations are 100% Tax Deductible as allowed by law
"A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE."
• 1-800-HELP-FLA (435-7352) - www.FloridaConsumerHelp.com 
Photo used under Creative Commons from pom'.
  • Home
  • ESPAÑOL
    • Inicio
    • Nuestra Historia
    • Nuestras metas
    • ¿Quiénes somos?
    • Nuestros Servicios
    • Condiciones Genéticas
    • Eventos & Actividades >
      • Colombia
      • Argentina
      • Perú
      • Miami
    • Agenda
  • About
  • SERVICES
  • IMPORTANT INFORMATION
  • Conditions
  • Contact & Donate
  • WORKSHOPS
  • Events & Fundraisers
  • Agenda
  • Blog